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  1. #16
    Total Eclipse's Avatar Happy Sparkles and Coffee
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    Quote TyeDyedButterfly View Post
    my family doctor writes my rx's in our area we do not have many doctors who will even write benzos I only take .5 twice a day and my serzone many doctors are taking benzos away from their patients and they are having to go cold turkey thanks to drug users.
    The issue that I'm concerned about is... he's willing to go 11 months without testing you for thing.. and he's not willing to research and outsource his knowledge to the medical community -- to get you help. I had my primary care doctor from birth... and I might be spoiled for him bending over backwards for me.... but.... if I was suffering, he would find a solution. If I would say "I need to see a therapist, but I'm scared to leave the house and can't find one that will take my insurance online" -- he would find a solution. If that would be in-home nursing, or in-home care, and have them take me (once I was comfortable with them) or somehow organize where a therapist would feel comfortable coming out. (i.e verify I'm not a threat to them). I know you said some of those things weren't available: but there is always ways to 'bend the rules' or work around it. He would always find a way to make sure that I got my health needs met... epsically, if it was preventing me from getting treatment with physical health.

    You deserve a doctor that will fight for your rights.

    Quote TyeDyedButterfly View Post
    I now have a Christian therapist
    This is great

  2. #17
    anxiouskathie's Avatar
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    Glad to hear you have found a therapist. I think my statement of you not having much faith in docs and physical therapists was said because in a prior post you had said that the physical therapist made you worse and the doctors don't understand what you were going through and therefore would not provide in home treatment for you. If I misread what you were say I do apologize. I think my words were staked out of context there

  3. #18
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    My doc just does not do that tho Please understand not all docs are the same and we can not control the doctor at all if I get into an argument with him he could very well drop me and there goes my meds then what? Me go cold turkey I have had me around 17[18 years now I know him well I have asked to be put in the hospital he will say well I just cant put you in like that I tell him to remember all my health problems in my folder but he wont even pick it up he will say I am a family doctor not a specialist.

  4. #19
    PinkButterfly's Avatar
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    Thank you and I will have home therapy coming back but they will not do more than 6 weeks but I have to set it all up my doctor wont and when I did the last time one therapist did not believe it was my hubby cleaning the house and cooking and shopping she actually said to me MY HUBBY WOULD DIVORCE ME! laughing her and the other therapist one was occupational and one was physical and thank God neither came back so I got the physical therapist who actually works on the people and a nice male nurse but they did not follow through on the mental help part and I was also told they do not report back to my doctor so I was a bit confused and I did question what the physical therapist could do for me without seeing a new ct scan on my back she said nothing about it but I did continue the exercises and was in a lot of pain but then she said will this is my last visit you were only allowed 6 . My Husband talked to our doctor two Mondays ago and I was not there but it was the same thing once again the doctor had no advice and said yes she can have home care again to do her labs but he said tell her to find one he did not say we will set it up and they can report back to me what is going on so once again its on me to find a home health care provider and for my insurance to pay it.

  5. #20
    Total Eclipse's Avatar Happy Sparkles and Coffee
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    Quote TyeDyedButterfly View Post
    My doc just does not do that tho Please understand not all docs are the same and we can not control the doctor at all if I get into an argument with him he could very well drop me and there goes my meds then what? Me go cold turkey I have had me around 17[18 years now I know him well I have asked to be put in the hospital he will say well I just cant put you in like that I tell him to remember all my health problems in my folder but he wont even pick it up he will say I am a family doctor not a specialist.
    If you had a neurologist that dealt with your brain tumor-- they would take over it in a heart beat. All you would have to say is: "I'm in the process of switching to a new PCP, during that time will you take over the scripts he provides me".

    Most will say yes.

    My family doctor isn't a specialist either.. however, he has monthly phone calls with them... and wants to know that I'm doing OK. Also, if I come in there with pain, or something concerning-- he's able to look at my file and with what my dx'es are -- judge off his medical knowledge if I have to go to the ER, or if I'm 'safe' enough to contact my specialist for further lab workup or etc.

    I understand not all doctors all the same I've had specialists like what your doc is doing -- and been told by patient rights advocacy I was being treated unfairly.

  6. #21
    PinkButterfly's Avatar
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    Once I get over agoraphobia which is the main issue right now as to why I am not seeing my Neuro at the James Cancer center he will ask me to get my surgery done and I would need the pre op testing but I first need to beat the agoraphobia My Family doctor had nothing to do with my Neuro my Cancer doctor set that up sadly the Cancer doctor could not understand why I was crying and shaking he said whats wrong with you I said dr liu are you serious? he said yes why I said I told you have panic attacks he said but why I got upset and said well jeeish really does every patient come into a cancer center treatment place and smile really big after being told they have a brain tumor or what ever they have he was still stumped and ask my hubby I had already done several lab draws nothing showing up so all he done was make me feel really dumb because I was crying and shaking he told me that the only way he could tell if I had cancer in other places was to slice me up in a million pieces.

  7. #22
    Total Eclipse's Avatar Happy Sparkles and Coffee
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    Quote TyeDyedButterfly View Post
    Once I get over agoraphobia which is the main issue right now as to why I am not seeing my Neuro at the James Cancer center he will ask me to get my surgery done and I would need the pre op testing but I first need to beat the agoraphobia My Family doctor had nothing to do with my Neuro my Cancer doctor set that up sadly the Cancer doctor could not understand why I was crying and shaking he said whats wrong with you I said dr liu are you serious? he said yes why I said I told you have panic attacks he said but why I got upset and said well jeeish really does every patient come into a cancer center treatment place and smile really big after being told they have a brain tumor or what ever they have he was still stumped and ask my hubby I had already done several lab draws nothing showing up so all he done was make me feel really dumb because I was crying and shaking he told me that the only way he could tell if I had cancer in other places was to slice me up in a million pieces.
    That's a neurosurgeon (slightly different). You need to see a generalized nouro clinic/ follow them every 3 months. I'd encourage you to talk with a nouro and build a relationship with them (doctor/ patient) and explain to them the need for these medicines and have a safe guard.

  8. #23
    PinkButterfly's Avatar
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    I don't need to see one of those I want to see my neuro and get this brain tumor out and if I could beat agoraphobia and panic and thinking I am dying everyday I would be and I did work in Health care and I actually did see many Neuros back when I had headaches so bad that were not surgeons they did the mris , mra.s eeg, mrv's nothing showed up so I went to the Cleveland clinic I was seen there and gave a novacain shot in the neck to ease the muscle tension I also seen a pain specialist who diagnosed me with fibro . I have seen every type of doctor possible I even had my ANA tested it came back Positive and I was told I am a Hep carrier due to my dad having it years ago and me around him . Thank you for the reply

  9. #24
    PinkButterfly's Avatar
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    from 2000-until 2005 I ran to every doctor then when I went in 2012 the tumor showed up.

  10. #25
    Total Eclipse's Avatar Happy Sparkles and Coffee
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    Quote TyeDyedButterfly View Post
    I don't need to see one of those I want to see my neuro and get this brain tumor out and if I could beat agoraphobia and panic and thinking I am dying everyday I would be and I did work in Health care and I actually did see many Neuros back when I had headaches so bad that were not surgeons they did the mris , mra.s eeg, mrv's nothing showed up so I went to the Cleveland clinic I was seen there and gave a novacain shot in the neck to ease the muscle tension I also seen a pain specialist who diagnosed me with fibro . I have seen every type of doctor possible I even had my ANA tested it came back Positive and I was told I am a Hep carrier due to my dad having it years ago and me around him . Thank you for the reply
    A good general nouro will help those issues and help direct/ point. Etc... you have anxiety and panic, to extreme, however, you also have physical health conditions that relate to the brain. It's quite possible, that the impairment from the tumors are causing or worsening these issues. A generalized neurologist, will medically help this, well you work with a someone that will get it removed.

  11. #26
    PinkButterfly's Avatar
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    I have told you several times I have one who will remove it and I do agree it is affecting me and my back along with my other health issues. I don't need another neuro doc I have a great one at OSU. I need help with AGORAPHOBIA.

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